Remember a while back I asked if anyone got bumps while pregnant? Well I decided to go to the dermatologist and get a biopsy so they could finally give me some answers, I was a little sick of the response I do not know.
WARNING I WILL COMPLAIN IN THIS POST!
Well I got the answer I figured I would get and one I really did not want to get. I know some of you out there know I have a disease called neurofibromatosis type 1 (NF1). (you can learn more about it here) It basically causes you to grow small harmless tumors on or under your skin. Well I have had a VERY mild case my whole life....I have a lot more symptoms then actual bumps, in fact I only ever had 3 that were under my skin...before i got pregnant. I guess change in hormone levels can affect it and cause more to grow.
So my bumps are Neurofibromas they will not go away unless i have them removed but since i now have more then i care to count I don't think i want that many scars all over my body. So i get to just live with it, i will most likely get more with each pregnancy. This is a scary thought to me! I really do not like the current ones i have and the chance of getting them on my face is something i really do not want!
I was born with NF1. My parents do not have it i got it through some sort if gene mutation. Unfortunately i have the chance to pass it on to each one of my children a 50% chance. Luckily since i have NF1 the less sever type my children can only get NF1 however they could get it worse then me or even have a more mild case then i did.
We are pretty sure Jackie has it. I need to take her to get testing for it. I hope Abigail does not have it. I feel horrible about the fact that I can pass this to my children. Knowing that I am giving them something that will affect them for the rest of their lives is sad and hard for me. I want to have a lot of kids. I want a big family. I grew up in a big family and loved it. I want my children to grow up in a big family, but yet I still have that fear. I worry that they will get some of the worse side effects that I avoided. Really I just worry I want my children to have EVERY opportunity and chance in like and do not want to hinder them, and this could.
When you look at it though 60% of people with it have a mild form, the next 20% have a correctable form, and the reaming 20% have problems that scare me! I guess the odds do look good, and if the Lord wants me to have children I need to have them and he will give them what ever he sees fit to go through in this life. Still I think its unfair and I just do not want to put my children through that, and really I do not want to be known as spots for the rest of my life....I am a cougar not a leopard!